Helping patients, caregivers, and loved ones learn how to access and participate in clinical trials is made possible by working with many different organizations.

Explore information and resources created by or with community-based and support organizations. Through patient advocacy and condition-specific education and awareness, they know the importance of and share our commitment to diversity in clinical trials, health equity, reducing health disparities, and improving health outcomes for all people.

Education and resources for you to discover and share

AF Association

AF Association

Providing information, support, education and awareness on atrial fibrillation. AF is the most common heart rhythm disorder leading to AF-related stroke and heart failure.

American Liver Foundation

American Liver Foundation

American Liver Foundation provides trusted support, resources, and education to the 100 million Americans affected by liver disease while advocating for public policy change on Capitol Hill, and funding liver disease research.

Amyloidosis Foundation

Amyloidosis Foundation

The Amyloidosis Foundation supports research for an earlier diagnosis, educates medical professionals, and provides patients with a comprehensive range of services.

Amyloidosis Research Consortium

Amyloidosis Research Consortium

The Amyloidosis Research Consortium (ARC) is a patient-focused nonprofit, harnessing the power of collaboration and innovation to advance science and both improve and extend the lives of those with amyloidosis.

Amyloidosis Support Groups

Amyloidosis Support Groups

Our mission is to educate and therefore empower patients as with rare diseases knowledge is truly power.

Arrhythmia Alliance

Arrhythmia Alliance

A collaboration of patients, caregivers, medical professionals and all those affected by or involved in heart rhythm disorders (arrhythmias) including AF / sudden cardiac arrest and unexplained loss of consciousness

Arthritis Foundation

Arthritis Foundation

The Arthritis Foundation champions life-changing solutions and medical breakthroughs for all people with arthritis.

Autoimmune Association

Autoimmune Association

The Autoimmune Association leads the fight against autoimmune disease by advocating and collaborating to improve healthcare, advance research, and empower the community through every step of the journey.

Bladder Cancer Advocacy Network

Bladder Cancer Advocacy Network

BCAN works to increase awareness of bladder cancer, advance bladder cancer research and provides education and support to the bladder cancer community.

Breastcancer.org

Breastcancer.org

Our mission is to help people make sense of the complex medical and personal information about breast cancer, so they can make the best decisions for their lives.

Breastcancertrials.org

Breastcancertrials.org

BreastCancerTrials.org is a free, patient-friendly, non-profit clinical trial matching service that helps people with breast cancer learn about and find clinical trials.

Cancer Support Community

Cancer Support Community

CSC is a global nonprofit network with 190 locations, including CSC and Gilda's Club centers as well as healthcare partnerships. These locations, along with a toll-free helpline, digital services, and award-winning education materials, provide $50 million in free support services to patients and families each year.

CancerCare®

CancerCare®

CancerCare is a national organization dedicated to providing free, professional support services for anyone affected by a cancer diagnosis.

Coalition of Skin Diseases

Coalition of Skin Diseases

The mission of the Coalition of Skin Diseases is to advocate on behalf of individuals with skin disease and increase the pace of discovery or a cure, while improving the quality of life for those affected.

Crohn's & Colitis Foundation

Crohn's & Colitis Foundation

The Foundation is a patient and professional-facing organization dedicated to finding cures for IBD, while improving the quality of life of patients.

Cure Duchenne

Cure Duchenne

Helps fund Duchenne research and assists families in finding a care team.

Fatty Liver Foundation

Fatty Liver Foundation

The Fatty Liver Foundation is a U.S.-based nonprofit that empowers people affected by steatotic liver disease through education, screening, advocacy, and support to improve early diagnosis, treatment, care, and outcomes.

FORCE

FORCE

FORCE improves the lives of individuals and families facing hereditary cancer.

Global Liver Institute

Global Liver Institute

Global Liver Institute saves lives by empowering patient advocates to collaborate with policymakers, clinicians, and industry partners to drive innovation and positive change in liver health.

Liver Education Advocates

Liver Education Advocates

Liver Education Advocates' mission is to increase awareness and provide education regarding nonalcoholic fatty liver disease and its more progressed forms.

Living Beyond Breast Cancer

Living Beyond Breast Cancer

Living Beyond Breast Cancer is a national nonprofit that understands there is more than one way to have breast cancer. Our mission is to connect people with trusted information and a community of support.

LUNGevity

LUNGevity

LUNGevity is transforming what it means to be diagnosed and live with lung cancer through research, education, and support.

Lupus and Allied Diseases Association, Inc.

Lupus and Allied Diseases Association, Inc.

LADA is dedicated to advocating for those affected by lupus and allied diseases through education, awareness, and research program initiatives to improve quality of life.

National Alopecia Areata Foundation

National Alopecia Areata Foundation

NAAF supports research to find a cure or acceptable treatment for alopecia areata, supports those with the disease, and educates the public about alopecia areata.

National Eczema Association

National Eczema Association

NEA is the driving force for an eczema community fueled by knowledge, strengthened through collective action and propelled by the promise for a better future.

National Headache Foundation

National Headache Foundation

Until we have a World Without Headache, the National Headache Foundation is committed to building the bridges needed to ensure that Everyone in the World With Headache achieves optimal QoL & Well-Being.

NephCure

NephCure

NephCure’s mission is to empower people with rare, protein-spilling kidney disease to take charge of their health, while leading the revolution in research, new treatments, and care.

Obesity Action Coalition

Obesity Action Coalition

Obesity Action Coalition is a more than 90,000-member National nonprofit dedicated to elevating and empowering individuals affected by the disease of obesity through education, advocacy, and support

Ovarian Cancer Research Alliance

Ovarian Cancer Research Alliance

OCRA is the leading organization in the world fighting ovarian cancer on all fronts, from the lab to Capitol Hill. OCRA advances innovative science, promotes preventative measures, and drives policy change, all while supporting gynecologic cancer patients and their families.

Parent Project Muscular Dystrophy

Parent Project Muscular Dystrophy

Parent Project Muscular Dystrophy (PPMD) Fights every single battle necessary to end Duchenne

Patient Empowerment Network (PEN)

Patient Empowerment Network (PEN)

Patient Empowerment Network (PEN) empowers anyone impacted by cancer through trusted information, health equity, health literacy, and shared decision-making.

Rheumatology Research Foundation

Rheumatology Research Foundation

The mission of the Rheumatology Research Foundation is to advance research and training to improve the health of patients living with rheumatic disease.

SHARE Cancer Support

SHARE Cancer Support

SHARE Cancer Support is a national, peer-led nonprofit organization that supports and educates anyone who has been diagnosed with breast or gynecologic cancer and provides critical information to the general public about signs, symptoms, diagnosis, and treatment options.

Sickle Cell Community Consortium

Sickle Cell Community Consortium

 The mission of the Sickle Cell Consortium is to ensure that this sickle cell patients and caregivers are at the center of sickle cell education, legislation, advocacy, research, and policy.

STOP Obesity Alliance

STOP Obesity Alliance

The STOP Obesity Alliance is a diverse alliance of organizations dedicated to reversing the obesity epidemic. STOP convenes organizations, conducts research, and develops tools for providers, advocates, policymakers, and consumers.

Susan G. Komen®

Susan G. Komen®

Our mission is to save lives by meeting the most critical needs in our communities and investing in breakthrough research to prevent and cure breast cancer.

The Chrysalis Initiative

The Chrysalis Initiative

The Chrysalis Initiative addresses the individual and institutional knowledge, attitudes and behaviors that impact health outcomes for Black women (and other disparate groups) with breast, lung and ovarian cancer. 

The Magic Foundation

The Magic Foundation

The MAGIC Foundation provides support and education to families whose children have growth failure, adults with endocrine disruptions and those with skeletal dysplasia.  We are global leaders in advocacy and support for Endocrine and Pituitary health across all ages.

The Myositis Association

The Myositis Association

The mission of The Myositis Association, or TMA, is to improve the lives of persons affected by myositis, fund innovative research, and increase myositis awareness and advocacy.

The National Bleeding Disorders Foundation

The National Bleeding Disorders Foundation

The National Bleeding Disorders Foundation is dedicated to finding cures for inheritable blood and bleeding disorders through research, education, and advocacy.

The Obesity Society

The Obesity Society

The Obesity Society’s mission is to support innovation in scientific research, bring best practices to clinical care, and advocate for policies that address the needs of people living with obesity.

Tigerlily Foundation

Tigerlily Foundation

Tigerlily Foundation’s mission is to educate, advocate for, empower and support women – before, during and after cancer. Our vision is to work to end disparities of age, stage, and color in our lifetime.

TOUCH, The Black Breast Cancer Alliance

TOUCH, The Black Breast Cancer Alliance

TOUCH, The Black Breast Cancer Alliance drives the collaborative efforts of patients, survivors, advocates, advocacy organizations, health care professionals, researchers and pharmaceutical companies to work collectively towards the common goal of eradicating Black Breast Cancer.

ZERO — The End of Prostate Cancer

ZERO — The End of Prostate Cancer

ZERO - The end of Prostate Cancer is the leading national nonprofit with the mission to end prostate cancer, ZERO advances research, improves the lives of men and families, and inspires action.

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